Some good news..
After spending the day yesterday doing very little, i got a good nights sleep last night and got up today felling pretty good. I say pretty good, a mild backache and a my hip was pretty sore, though this tends to ease up once i start moving around. Until i read Wendy's posts from the last few days (link on right) I had no idea this was hepC related, and not surprisingly neither had my GP. Other than that no complaints.
I noticed this morning i had a message from the GI nurse, she's managed to get me an appointment to see the psychiatrist at the infectious diseases unit a bit quicker than she thought, its on monday!!
This news added to me having a good day and since tomorrow is injection number 3, i can look forward to 'checking another box'.
I noticed this morning i had a message from the GI nurse, she's managed to get me an appointment to see the psychiatrist at the infectious diseases unit a bit quicker than she thought, its on monday!!
This news added to me having a good day and since tomorrow is injection number 3, i can look forward to 'checking another box'.
posted by Alan at 11:46 PM
7 Comments:
Just found your blog.
I hope you'll find the act of writing as beneficial as I do, it really helps me collect and sort my thoughts and feelings, especially with the concerns you may have over your health.
It's kind of "a problem shared..."
All the best, keep well, and I will pop back from time to time to hear more.
Hi Alan,
Find out from your nurse if your rheumatoid factor is positive in your biochemistry results. I think (I'm sure someone will tell me if I am wrong here) that the normal range is 46 - 100 (mine is 59 so is positive).
I dont think that it is widely accepted at the moment that this is related to HepC.
Matthew Dolan is his excellent 'Hepatitis C Handbook' says:
"Blood test results from HCV+ people often find elevated levels of rheumatoid factor" and he quotes
a recent letter in 'The Lancet':
"Our findings indicate that increased HCV-RNA concentrations are associated with Rheumatoid Factor in patients who are persistently infected with HCV...we found that the immunopathogenic mechanisms of autoimmune disease with appearance of rheumatoid factors do require the continuing presence of the triggering virus..."
I am hoping that the pain goes away when (and if)the virus dissappears.
I am sorry that you have this pain too.
My new bike is still sitting in the hall waiting for me to take my first ride around the park. I am struggling with the exercise bike at the moment, but will not give up hope yet.
Lots of traffic on your blog now huh?
Hope injection #3 goes smoothly.
Speak soon
Wendy
Hi Alan,
I have also just found you. In my experience the more tired I am the less well I sleep. So an afternoon nap actually means I sleep better at night. Perverse, but true.
My hip only started hurting once I began treatment....not sure how that fits into the debate!
Best of luck,
Jane
HI ALAN,
GOOD LUCK FOR MONDAY MATE, LET US KNOW HOW IT GOES.
STEVE
Hallo Alan - another one who just found you!
Good luck for tomorrow.
I tend to get a lot of pain in my left shoulder. This tends to stiffen my arm and turn my hand an interesting colour.
I also share the sleep problems. For years now I have been going to bed in the early hours, or waking up during them. I took sleeping tablets for a while, but gave up when I woke up wearing my boxer shorts with a pair of socks down the front. Don't ask.
I'll look forward to reading more of your experiences in the future.
Hi Alan,
Hi Alan,
Opposite for me - I used to have terrible lower back/hip pain prior to treatment. Since commencing treatment, it is completely gone!
Hope shot goes well tomorrow. I have a chart on my fridge and "tick off" each injection, too.
Sue
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